Scary new Symptomes

After having Brook's feeding tube removed we ended up having to go out of town for business. While in Sommerville Brooklyn got sick and started vomiting after every feed. She got a low fever and was very lethargic. Worried, but not panicked because this had happened on other occasions, we decided that she was okay that we would treat the fever with Tylenol and Motrin to keep it down (never got over 99.4). At around 7:30 she was sleeping on my chest, she began to squirm a little and I thought she was just waking up. Her body tensed up and started lightly jerking. She was gasping for air but could not get a breath. I screamed for my husband while running through the house "Something is wrong with Brook, she is not breathing!!!!" I was absolutly terrified!! By the time that found my husband she was purple and had went limp in my arms. My husband (Ex-state trooper and always calm) yanked her from my arms laid her on the floor and began trying to feel for a pulse, not finding one he began to do CPR. While a friend called 911 in a panic. After about 3 1/2 minutes of being unconscious with no signs of life I heard my baby girl start weakly crying just as the paramedics came in. They took us to the hospital where we ended up staying the night. Doctors told us that her calcium level was fine and that she had a febrile seizure (not likely at 99.4). They also told us that seizures were not related to VCFS , and that she would more than likely never have another one. Well, they were WRONG!!! about a month later the same thing happened and she was care flighted to Scott and White hospital in Temple, and while in the ER she had another seizure (2 within a 4 hour period) we ended up staying there about a week. They did every test imaginable but could find no reason for the seizures except to say she had a seizure disorder with epileptic tendencies. She was released from the hospital on a seizure medication and a vitamin B6 (to help with the side affects of the seizure medication). we had one more seizure where we were taken by ambulance to the hospital and they gave her a stronger seizure medication. After my poor little girl going through 4 seizures and having to be revived, we for at the moment seem to have figured out her dosage and medication!! Her last seizure was Spring of 2009 so from a neurological stand point we are stable for the time being!!!